Category Archives: Patient’s perspective

A patient’s perspective: Dealing with Fatigue as an MSK Patient

Fatigue sign

Let’s talk fatigue. More often than not, I’m completely exhausted. Even healthy people get tired at times, so they think they know what we mean when we say we’re exhausted. It’s when I have to nap for several hours a … Continue reading

Posted in Patient's perspective | 3 Comments

Op-Ed: My Experience with using Cannabis to manage my Chronic Kidney Stone Disease.

Cannabis public domain image from Pixabay under Creative Commons CC0

*Disclaimer: The opinions in this post are mine alone and publishing of this post is not an endorsement by this website for this treatment approach* This post is my story about my 28 year long (and counting) journey living with chronic kidney … Continue reading

Posted in Patient's perspective | 15 Comments

Everything you need to know as a new stone former in 8 minutes from Yahoo’s David Pogue

David Pogue's Kidney Stone Video

Being a new kidney stone former can be a frightening and confusing experience. Even if you manage to get medical care promptly, you may be left with a number of unanswered questions: What are your options for treatment? What should you expect during and … Continue reading

Posted in Information, Patient's perspective | 10 Comments

A man’s perspective on being an extreme stone former.

Jerry Cepican

Something I have noticed over the last several years while reading up on kidney stone formation, living with stones, and generally how to prevent stones is: almost everything is written by women. I find this a little odd as typically … Continue reading

Posted in Patient's perspective | 54 Comments

Living, Struggling, and Advocating with Medullary Sponge Kidney: An Updated Patient’s Perspective

Mary Maston

  It has been a long time since I’ve written for kidneystoners.org; almost three years. Reading back through my first article, it seems like a lifetime ago. A lot of things have happened since then, and I thought it was … Continue reading

Posted in Patient's perspective | 15 Comments

Living with Medullary Sponge Kidney (MSK)–the Patient’s Perspective

Medullary Sponge Kidney (MSK) ribbon

My how time flies when you’re having fun… or is it when you’re in pain? My last post almost two whole years ago touched on my experience with MSK and how I was coping with it. Let me tell you … Continue reading

Posted in Patient's perspective | 30 Comments

Passing the family stone – A mother’s perspective on her daughter inheriting medullary sponge kidney disease

Baby feet

Passing a kidney stone is more painful than childbirth, I’ve heard. I’ve both given birth and passed a stone without pain killers. But I’ll tell you worse pain than both: passing on your kidney disease that causes kidney stones onto … Continue reading

Posted in Patient's perspective | 9 Comments

Kidney Stones and Science Fantastic: A Patient’s Perspective

Image from Wikimedia commons

A few weeks ago, I found myself in the emergency room of the University of Arizona Medical Center under excruciating pain. I was pretty sure, but far from certain, that this was a kidney stone – that same pain had landed … Continue reading

Posted in Patient's perspective | 3 Comments

Pain Management and MSK: A Patient’s Perspective

Kayla Dean Picture

Editor’s note: Kayla contributes posts on her experiences as a patient with medullary sponge kidney, a condition that causes a large amount of kidney stones to form and which can cause chronic pain. Her experiences may therefore not represent those … Continue reading

Posted in Patient's perspective | 31 Comments

From a Patient’s Perspective: The Ureteral Stent: Friend or Foe?

Ureteral stent

Even though different people respond to stents in different ways, I suspect anyone who’s ever lived with a ureteral stent remembers the experience.  I have had two, and both were, indeed, memorable. Prior to undergoing a pyeloplasty, (a surgical procedure … Continue reading

Posted in Patient's perspective | 652 Comments

Advocating for MSK

Mary photo

Welcome to KidneyStoners.org and my guest post from an medullary sponge kidney patients’ Advocate’s perspective. When I was asked to be a contributor to this site, I jumped on the chance. It isn’t everyday that MSKers are provided the opportunity … Continue reading

Posted in Patient's perspective | 20 Comments

Medullary Sponge Kidney: A Patient’s Perspective

Kayla portrait

If you want to learn about MSK or kidney stones in general, you’re in the right spot. Personally, in my 8 years of dealing with this disease I’ve never found such an informative and supportive website produced by physicians. As … Continue reading

Posted in Patient's perspective | 64 Comments

Coming to Terms with the Need to be Over-Hydrated – From a Patient’s Perspective

patient's perspective

Water, Water Everywhere: Coming to Terms with the Necessity to be Over-Hydrated. I know the consumption of plenty of water is necessary in order to stay properly hydrated, especially if one lives in a hot and dry climate.  I live … Continue reading

Posted in Patient's perspective, Prevention | Tagged , | 1 Comment

Kidney Stones: Why me? – From a Patient’s Perspective

patient's perspective

A healthy lifestyle: In some ways I’m a typical kidney stone former, but in other respects, I suppose I’m not.  I’m a female in my early sixties who lives in a very hot and dry climate.  I work full-time.  I’ve … Continue reading

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